I was hoping you could help me get my son’s story out to the world.  On the 26/8/2020 , my 5 year old little boy was diagnosed with a cancer called neuroblastoma. It’s on his right adrenal gland, and wraps around very important arteries in his kidney and leading to his heart. My son’s cancer is inoperable and is categorised as a stage 3 cancer. 

My son has already received his first round of chemotherapy and will have at least 3 more rounds followed by surgery and radiation. This chemotherapy doesn’t come without risks to his kidney, liver and heart function. My little boy has a complicated form of Neuroblastoma in the form that it is growing like a low grade tumour, but it’s genetics are that of a aggressive one. It is pressing down on his kidney and up on his liver causing him  pain. 

My partner and I have both had to leave our jobs and travel over 300km to the nearest hospital that does paediatric chemotherapy, leaving behind our home and jobs. We can receive some treatment at our nearest local hospital, however they do not do paediatric chemotherapy – our own capital, Canberra hospital, does not do chemotherapy.. 

I have had to leave my job permanently and it’s possible my partner may have to as well, he’s working when he can, but appointments complicate that. Our income has split in half, receiving only $130 a fortnight in carers payment. Due to me previously being in work, we’re not ‘eligible’ for any crisis payments.
To add to this ordeal, we have also been advised that our home needs extensive repair as the house is separating in half due to an expansion joint sinking. We currently live in public housing and despite our extensive issues with our house, have had next to no help or support getting our house fixed. Due to this we, on top of our son needing chemotherapy, may need to relocate. 

We have created a GoFundMe fundraiser and a page called ‘William’s journey through Neuroblastoma’  we would really appreciate help getting word out as our family desperately needs help. I’ll link the pages below if you feel like reading more about our story. 
Thank you. 

https://www.facebook.com/Williams-journey-through-Neuroblastoma-103152871530223/

https://www.gofundme.com/f/financial-support-for-williams-neuroblastoma?sharetype=teams&member=5621612&utm_medium=copy_link&utm_source=customer&utm_campaign=p_na+share-sheet&rcid=6eb8f645d9e747de80c6dd5f1ba90e72

When Claudia went to Lincoln County Hospital…she had a virus apparently!
Nope, she was dying.
SOME of the nurses were so rude, I still truly suffer because of them. Two were so rude, so cruel…telling me I was looking for attention and Claudia was holding up a bed?

They treated my baby girl so awfully yet a child opposite with tonsillitis was made out to be a hero? Such a fuss was made of ‘that said child’ and quite rightly so…whilst Claudia whimpered and I use that term accurately, as she didn’t want to cause annoyance or make a fuss. She was just FIVE years old. ‘Said’ child had ice-cream, songs, entertainment…yet we were ridiculed. I was one of ‘those mums’ who longed for attention? It makes me angrier than ever thinking back. No apologies. No reason. No care.
Some people really need to consider their career and reasoning in life.

They were proved wrong in the most horrific of ways. I never saw either of them again. It has taken me so many years to speak out. It still hurts. It makes me feel like I let her down.
Follow your heart, your beliefs and your courage.
Always remain strong ❤

credit https://www.facebook.com/claudiascause.org.uk/

I’m scared.
I said it.
I’m scared.
Yes, I am scared of viruses and hospitals overrun,
I am scared of ICU and not breathing by myself,
I am scared of dying.

But, I am also scared of a world with no future for my children,
I am scared of what happens when you stop teenagers talking, walking, spray painting,
And instead you watch them slowly and silently implode, dying inside
Or go and ‘break the rules’ in a desperate attempt to be human.

I am scared for the old ladies I used to talk to.
Visiting, passing, meeting in the shop.
The life blood of gossip beating in their veins,
‘Did you hear, hen, about Sheila’ their eyes sparkling with the importance of information passed on.

I’m scared for the boys and girls who work in the pubs and cafés.
Minimum wage to be nice to maximum wankers.
What now?

I’m scared.
We’re not all in this together,
This is the end for many.
We should all be scared.
It’s OK to be scared.

I am scared.

Credit https://www.facebook.com/peterandjaneandmummytoo/

Ladies be picky as to whom will be your child’s father!

Father, 27, is charged after refusing to break open window of hot car to save his one-year-old daughter from dying because of the cost of the damage

A Las Vegas dad has been charged with child abuse leading to substantial bodily harm after his one-year-old daughter was found dead in a hot car.

Sidney Deal, 27, was arrested on Monday after refusing several efforts to free his daughter, Sayah, from the hot car, where she was trapped for about an hour.

Deal was booked at the Clark County Detention Center and is being held on $20,000 bail. He didn’t attend his initial hearing for medical reasons.

The Las Vegas Man told police officers on the scene that he didn’t want to break the car windows of his Nissan Altima because of the potential cost to the vehicle, according to The Daily Beast.

His partner also called an insurance company who offered to send a tow truck, but Deal refused the request after a disagreement about the price.

Police officers offered to call a locksmith, but Deal used the opportunity to speak on the phone with his brother instead.

Deal reportedly told officers that Sayah had simply fallen asleep, and that the air conditioner in the vehicle was on, according to KVVU-TV.

When officers were finally able to retrieve Sayah from the car she was already dead, with police stating her body had gone into rigor mortis.

‘My son was not negligent the way he handled it,’ Artavia Wilson said to KLAS, in regards to her son, Deal.

KTNV reports Deal told the police that he accidentally locked Sayah in his car after a fight with his girlfriend. The girlfriend told police he returned to her just a few minutes after leaving with Sayah.

Additionally, Deal talked on the phone with his brother, Samid, who arrived and offered to punch in a window after wrapping his shirt around his knuckle.

Deal reportedly prevented Samid from breaking the window, concerned that he wouldn’t be able to afford a fix for the car.

The National Highway Traffic Safety Administration notes there were 53 hot car deaths in 2018 and 52 hot car deaths in 2019. So far, there have been at least 23 children who have died of heatstroke in 2020.

Credit https://www.facebook.com/girltalkinspire/

March 10th 2017 My life changed forever.
Car seats save lives. I put Jordan in a booster seat and strapped him in with a seat belt not knowing that his weight and height would have such an impact on his life, literally.

He was in his sisters old booster. I was in the process of washing his cover to his carseat and had taken it all apart so I figured he would be ok in the booster for the day since I was in a rush to go to my daughter’s school program and never in a million years thought I’d have an accident because I drive like a granny and boy was I wrong.
My Car flipped 4 times and the booster seat slid from beneath him causing him to slide through the seatbelt.
Ejecting him from the back window.

I remember grabbing his red jacket from the backseat realizing that he wasn’t in my backseat anymore. I recall kicking my windshield and screaming, running toward the highway, seeing him stand up and trying to yell “momma” when suddenly I see blood coming out of his mouth and eyes and notice his face and the back of his head fall off. I remember the man and his son pulling over, he forgot to put his car in park when he realized what had happened, I recall the elderly couple running out to where we were, trying to calm me down covering us with blankets and praying. I recall me yelling “his name is Jordan, he is 3 years old, he was born April 2nd 2013, he likes Spiderman.”

I remember over 30 strangers surrounding us crying, yelling and praying. The ambulance separating us and hearing them over the radio. “The baby is losing a lot of blood and is unresponsive.” I recall them turning it off and mentioning a helicopter.
It took 12 hours of surgery just to put him back together and stabilize him on a life support machine.
Today Marks 3 years since the Drs told me he was trying to out breathe the machine and that I could stop planning for a funeral because my son is a fighter.

Weeks after, he woke up from a coma, he was going to be blind and possibly be in a vegetative state.
3 surgeries, 21 hours and 132 pieces of glass later they said his eyes were intact. I taught him how to get around (before he could see)walk, talk, potty train, use his hands again and most importantly PRAY, my baby prayed everyday.

My point of this post is; Accidents can happen to anyone anywhere. Carseats save lifes. God is real, never question him and always have faith.
Jordan and I love and are thankful for everyone who went by the hospital, prayed for him and helped us and show him love. We are forever grateful to all the good samaritans, sheriffs, surgeons, nurses , Texas state troopers, the EMS, EVERYONE That helped us on that day (Lamb county, Hockley county and Lubbock ❤)
If your child is a screamer and doesn’t like being in a carseat, just remember; a headache is nothing compared to burying your baby 6ft under. If you love them you will care.

Credit https://www.facebook.com/lucero.duarte.332

Do you recognize this picture? Is this a picture of you? This image from Pixar’s “UP” is a scene likely missed by most of its child viewers, but ripped the hearts out of every mother and father that has sat in a puddle of loss, a baby gone.

October is Pregnancy & Infant Loss Awareness Month. 1 in 4 women suffer from the loss of their baby through pregnancy, delivery, or infancy. There are likely SEVERAL women on your news feed who have suffered this loss. And you don’t know about it. We must end the stigma around miscarriage and infertility. We must share our stories so that others may come forward to share theirs. It’s time to shatter the silence.

“When a child loses his parent, they are called an orphan. When a spouse loses her or his partner, they are called a widow or widower. When parents lose their child, there isn’t a word to describe them.”

I see you. I hear you. I love you. I love your baby. Feel free to use this post to share your stories of loss, redemption, and to say your bab(ies) name(s).

Credit https://www.facebook.com/fairfaxbirthcare/

It took a lot for me to write this..
AWARENESS 👼💔
Late period, belly cramps and feeling sick.
This is where it all started, so I done what every other girl would of done.. I went to get a test (5 in my case) I couldn’t wait till the next morning so I done the test in town – IT WAS POSITIVE!

I got mixed emotions but the one that stood out was happiness, constant smile on my face and I just couldn’t believe it. Your big sister even kept pointing and rubbing my belly saying ‘baby’. My mind went overboard thinking about all baby clothes, if you was a boy or girl and how much my life was about to change – I was so excited! You even gave me a little bump due to the bloat even though you was so tiny.
Then the dull stabbing pain for which I got told was ‘normal’ and it was my body ‘stretching and adapting’ which then lead to spotting which I was also told was normal. I still went to hospital to get checked over. They done a internal and external scan but said they couldn’t see anything even though the bloods and test confirmed the pregnancy. Got told to come back in 48hours for MORE bloods then had to wait another 24hours for results. I can honestly tell you that was the worst 72hours of my life! On the day I was meant to get my results I went to work just not feeling right. Went to the toilet and I HEARD you fall into the water, right there my heart shattered. Right there my world fell apart.
Instantly I felt empty, I felt numb and broken. I no longer see the world how I use to.

I don’t go a day without thinking of you.
I have to hold back the tears when I see a bump or baby.
I have to act happy for friends/family when they tell me they are pregnant even though I’m dying inside.
Some people (mainly those who ain’t been through it themselves) think it’s ‘nothing’ and ‘people have been through worse in their life’ and yeah to you it may be nothing but to me it was my life, my world and now it’s gone. It will never be the same.
I may not of held you in my arms but I will forever hold you in my heart, I love you bumpy! 💖

Credit to my good friend https://www.facebook.com/sylvia.andreas.167