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Tag: seizures

  • The Public Is In Desperate Need Of Guidance

    So after a week away enjoying the sun and swimming with our gorgeous girl this week, it came to my attention the general public is desperately in need of some guidance around interacting with kids with disabilities and their families. I will premise this is just how I feel, but perhaps others feel the same…

    1. First and foremost they’re just kids. They just want to play with your kids. They may think you’re funny and want to interact. It’s really as simple as that.

    2. Mums and dads – if we arrive at a pool, park etc. and you suddenly corral your kids with “we’ve just finished” or “kids it’s time to go and get a snack”. We know what you’re doing. We see you. You’re nervous your kid is going to be rude and would rather avoid it altogether. Seriously my family can clear a pool in five minutes.

    3. If your child is staring, take the lead. Say hello. She may say hello or she may ignore you, but you’ve shown your kids what to do. I swear I can count on one hand how many kids said hello to Lucy this week and we encountered up to a hundred in the resort. I love those kids, they warm my heart.

    4. If your child is being rude and running away, laughing, pointing, staring with an ugly face, intervene and quietly pull them away and tell them that’s rude. You’d do it if they did it to a neurotypical kid! Don’t run away from this opportunity to show them the right way to interact. This world will never get better for people with disabilities if we don’t teach people to respect.

    5. She sees everything and she hears everything. I hear it and I see it. I have the world’s best poker face but the family sees it all. We push it down to the deepest parts of our hearts because if we acted on this, we would be arrested repeatedly.

    6. Don’t be scared to talk to me, ask me a question. The most wonderful young mum came to talk to me in the pool, turned out she had grown up with a young man with CP and wanted to know about Lucy. After having Lucy be ignored for two days by everyone, it felt so good to be seen.

    7. We’re totally jealous of all the parents sitting around the pool/park chatting without having to watch like a hawk. Lucy took her seizures to a new level this week with one in the pool, so our safe space of putting on her floaties and letting her play is now out the window. We’re exhausted having to watch all the time. There’s never a moment outside the house we’re not having to watch. And she’s 12 years old – we’ve been watching her obsessively for 12 years. Not great for your mental health.

    8. On that note, feel free to offer some help. I’ll let you know if I’m okay, but I’ll also let you help if you can. When I’m trying to get Lucy out of a hard physical situation, I would love someone to offer help at least. I was struggling to get her out of a pool and 15 people sat and watched me. On that note, because we’re having to be so vigilant maybe offer to get them a coffee? I would have killed for a margarita from the pool bar but just couldn’t take my eyes off her to make that happen.

    I know it can be hard with kids, I get it, really. But imagine if that was your child that you saw ignored and run away from over and over again. You would want it to change for her in some way.

    I’ve made this public, feel free to share.

    Credit https://www.facebook.com/jen.kyriacou

     

  • Febrile Convulsions I Didn’t Know What To Do

    FEBRILE CONVULSIONS!!!!

    LONG POST BUT PLEASE READ.

    So just wanted to put a little warning out there for all the mummies that don’t know about febrile conculsions,

    On Saturday my whole life nearly shattered, I was out the full day with Matthew, we went to the park, and went for some food he was fine and acting his usual self hyper and full of energy, as we were walking home he fell asleep so I just left him to it, once we got home I took him out his pram and put him in his bed, and that’s when I noticed he was breathing very fast.

    So I stripped him down to his vest and took his temperature, his temperature was at 39.9 so gave him some ibuprofen (baby) to help and within 2 minutes of him taken it he started to daze off so I started to cup his cheek and talk to him asking if everything was okay, he then started to shake, I didn’t know what to do or what was happening I picked him up and he started to get worse and worse my baby started turning purple.

    I panicked and shouted to my partner Marc and he took Matthew and sat him on his knee trying to make sure his tongue never rolled to the back of his throat, he’s then started to turn blue 6 minutes in and he still wasn’t coming round, mean while we were on hold for the ambulance, after about 10 minutes my baby’s body went floppy and foam was coming from his mouth he was unresponsive, he came back round for a few seconds and was crying normal again then the he went straight back into another seizure.

    The  ambulance came and he was given oxygen and they took his heart rate as they were doing there thing I was thinking it’s my fault thinking I had done something I had a panic attack and my mind went blank, I couldn’t think straight i was broken and terrified that I was going to lose my baby💔, we got to the hospital and they told me it was “ febrile convulsions” and that it’s common in baby’s up to the age of 6, it’s caused by a baby’s temperature being too high and because they can’t regulate there own body it kinda goes into shock it occurs in about 3 in 100 children , and can also can re-occurs approximately 3-4 times in a child.

    I was never told anything about this as a new mum you would think they would give you warning if a babies high temperature could cause a seizure, i though the worse and though I was going to lose my baby and I would never in a million years wish that on my worst enemy💔,

    What do you do if your baby starts to have a febrile convulsion seizure?

    Try to keep calm as much as it’s frightening they will not be aware of anything that’s going on.

    Do not hold your child down when they’re having a fit

    Lay your child on the floor or ground on their side to prevent choking or accidental injury

    Do not put anything near or in your babies mouth

    Take a note of how long the fit last and seek medical attention.

    Most babies come round within 5-10 minutes and will be completely fine and not aware of anything that’s just happened.

    Credit https://www.facebook.com/bobbieanne.simpson

     

  • This Is Why You Don’t Give Dogs Chocolate

    Chocolate has a toxic ingredient called theobromine which is poisonous to dogs, dark chocolate is the worst  but it is still quite high in milk chocolate.

    Urgent treatment may be needed if your dog has eaten chocolate, you can help the vet by telling them how much you think your dog has consumed and bring the wrappers in.

    Symptoms for chocolate poisoning will occur between 4 and 24 hours after consumption, normally with vomiting and diarrhoea, increased heart rate, hyperactivity, rapid breathing and possible seizures.

    There is no antidote for chocolate poisoning in most cases the vet will make your dog vomit, also they may wash out your dogs stomach or feed them activated charcoal which will help to absorb any theobromine left in the dogs system, they may also need to be placed on a intravenous drip, medication to control heart rate and to stop seizures.

    This is obviously very distressing for the dog and can be very upsetting and expensive for the owner.

    This post sums it up by Greenbrier emergency animal hospital “This is a great “action shot” of what we start with after your dog presents for a Chocolate Toxicity. Thanks Dr. Antonucci for this picture. Thanks to the dog’s owner for allowing us to post and bringing her in to be fixed. Thanks to my staff for mopping up the floor. Thanks to the air filters for ridding the office of the smell of yucky chocolate. Thanks to the staff member who totally under estimated when placing a single blue pad to catch the vomit”.

    Do Not give your dog chocolate and if by accident they get hold of some please keep an eye on them and seek veterinary treatment if needed.

    If you have a story you wish to share or want to raise awareness please email us at mumsadviceltd@outloook.com