Tag: FIT

  • Hair Grooming Syncope Is Scary

    I experienced one of the scariest moments of my life this morning with my little sister and I am going to put this out there because I had never heard of this in my life!

    Hair-grooming Syncope…

    Look it up. This morning I was curling my little sister Gracie’s hair for church. I was maybe about five minutes in and she starts to gag a little and looks kind of pale. I asked her if she was going to get sick and she shook her head yes. I get my little daughters out of the bathroom and start to hold her hair up for her as she leans over the toilet. 30 seconds later… she looks at me. She is extremely pale with blue lips and starts to pass out.

    Her pupils got really big and I caught her. I start screaming for Dale to come help. Gracie has a blank stare and look on her face and is completely unresponsive and limp for about a minute. Her hands were also shaking. Very seizure like. She then comes back to and says she feels much better. She says she remembers hearing us talk but couldn’t see us. I was crying. She was very confused. My mom and dad rush to my house and a few hours in Children’s hospital, an EKG, and a head scan later… she is fine.

    Turns out there is something called hair-grooming syncope affects kids from ages 5-13. They said they see about 1-5 cases a year. Turns out brushing, curling, braiding, or drying can cause nerve stimulation on the scalp and cause some children to have seizure like symptoms. I HAVE NEVER HEARD OF THIS BEFORE! We were told if she ever starts to feel nauseous or light headed while getting her hair brushed to sit down and take a break. I am putting this out there for others to see. If a kid ever complains of their belly hurting or feeling light headed while they are getting their hair done, make sure they take a seat and keep a close eye on them! Apparently very rare but so scary to see it happen!

    https://www.facebook.com/alicia.brown.90226628

     

  • Febrile Convulsions I Didn’t Know What To Do

    FEBRILE CONVULSIONS!!!!

    LONG POST BUT PLEASE READ.

    So just wanted to put a little warning out there for all the mummies that don’t know about febrile conculsions,

    On Saturday my whole life nearly shattered, I was out the full day with Matthew, we went to the park, and went for some food he was fine and acting his usual self hyper and full of energy, as we were walking home he fell asleep so I just left him to it, once we got home I took him out his pram and put him in his bed, and that’s when I noticed he was breathing very fast.

    So I stripped him down to his vest and took his temperature, his temperature was at 39.9 so gave him some ibuprofen (baby) to help and within 2 minutes of him taken it he started to daze off so I started to cup his cheek and talk to him asking if everything was okay, he then started to shake, I didn’t know what to do or what was happening I picked him up and he started to get worse and worse my baby started turning purple.

    I panicked and shouted to my partner Marc and he took Matthew and sat him on his knee trying to make sure his tongue never rolled to the back of his throat, he’s then started to turn blue 6 minutes in and he still wasn’t coming round, mean while we were on hold for the ambulance, after about 10 minutes my baby’s body went floppy and foam was coming from his mouth he was unresponsive, he came back round for a few seconds and was crying normal again then the he went straight back into another seizure.

    The  ambulance came and he was given oxygen and they took his heart rate as they were doing there thing I was thinking it’s my fault thinking I had done something I had a panic attack and my mind went blank, I couldn’t think straight i was broken and terrified that I was going to lose my baby💔, we got to the hospital and they told me it was “ febrile convulsions” and that it’s common in baby’s up to the age of 6, it’s caused by a baby’s temperature being too high and because they can’t regulate there own body it kinda goes into shock it occurs in about 3 in 100 children , and can also can re-occurs approximately 3-4 times in a child.

    I was never told anything about this as a new mum you would think they would give you warning if a babies high temperature could cause a seizure, i though the worse and though I was going to lose my baby and I would never in a million years wish that on my worst enemy💔,

    What do you do if your baby starts to have a febrile convulsion seizure?

    Try to keep calm as much as it’s frightening they will not be aware of anything that’s going on.

    Do not hold your child down when they’re having a fit

    Lay your child on the floor or ground on their side to prevent choking or accidental injury

    Do not put anything near or in your babies mouth

    Take a note of how long the fit last and seek medical attention.

    Most babies come round within 5-10 minutes and will be completely fine and not aware of anything that’s just happened.

    Credit https://www.facebook.com/bobbieanne.simpson

     

  • Epilepsy Is Hard But My Loneliness Is Worst

    I knew my life was going to be hard when I was diagnosed with epilepsy at the age of 11 , but I didn’t realise just how hard it would actually be.

     The hardest part is watching everyone you get close to pull away and move on with their lives some with amazing careers some having families and im not saying their lives are perfect far from it but when I sit looking at my own life im still exactly where I was the day I left school but 20 years has gone and EpI have even fewer options in life left.

    … and what have I got for it … experience … pain .. loss… grief … they say you get out of life what you put in .. but there’s no way in hell I put all this in.

    I don’t need to hear that a friend of yours has epilepsy and they have a family a job etc, there are different degrees of epilepsy, I have Grand mal seizures these have two stages:

    • Tonic phase. Loss of consciousness occurs, and the muscles suddenly contract and cause me to fall down. This phase tends to last about 10 to 20 seconds, i have had head injuries, broken bones and a fear of going out.
    • Clonic phase. The muscles go into rhythmic contractions, alternately flexing and relaxing. Convulsions usually last one to two minutes or less, this can happen to me up to 50 times a day.

    Yes i am on medication, i have tried cannabis oil which has helped t a degree but not prevented my seizures, i just have to face that this is my life for ever, the pain is bad,  but the loneliness is worse, I wish I was normal but for the most part I just wish I had an understanding friend.

  • Hands Up If You’ve Heard Of Anoxic Seizures

    Reflex anoxic seizures

    Hands up if you’ve heard of it before?

    No nor had I until my boys. These seizures are explained as child hood seizures, triggered by pain, high emotions and general upset. These are often confused with breath holding syndrome. Breathe holding the child will turn red and sometimes faint due to holding their breath.

    With reflex anoxic seizures, the child turns white….deathly white, their lips go blue, eyes will darken. They fall no matter where they are and will pass out. The passing out is triggered by their heart stopping. With these seizures the body will shock the heart into restarting within 49 seconds, but the child (rarely adult!) can be in a state of unconsciousness a little longer and will require sleep to help recover.

    My first boy started having these at just 6 months old, continued until the age of 3….after 3 they became few and far between. These can be diagnosed at a hospital and they will follow with an ecg. Please see the link for more detail..

    http://www.heartrhythmalliance.org/stars/uk/reflex-anoxic-seizures-ras

    Below is a video of a child having a reflex anoxic seizure, viewers beware it is distressing to watch

    “>[youtube https://www.youtube.com/watch?v=xfxmBSdJNiA&w=560&h=315]

    If your child has a blue breath-holding spell or reflex anoxic seizure, you should:

    1. stay calm – it should pass in less than a minute.
    2. lie them on their side – don’t pick them up.
    3. keep an eye on them until the spell ends.

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