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Tag: disabled

  • @sportbaby1 God bless them#disabled #disability #life #mom #fyp #foryou #foryoup…

    @sportbaby1 God bless them#disabled #disability #life #mom #fyp #foryou #foryoup…

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    @sportbaby1

    God bless them❤️❤️🙏🙏#disabled #disability #life #mom #fyp #foryou #foryoupage

    ♬ Love Is Gone (feat. Dylan Matthew) (Acoustic) – SLANDER, Dylan Matthew
    https://www.tiktok.com/@sportbaby1/video/7280316131997519147
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    Tiktok by Evelyn

  • The Public Is In Desperate Need Of Guidance

    So after a week away enjoying the sun and swimming with our gorgeous girl this week, it came to my attention the general public is desperately in need of some guidance around interacting with kids with disabilities and their families. I will premise this is just how I feel, but perhaps others feel the same…

    1. First and foremost they’re just kids. They just want to play with your kids. They may think you’re funny and want to interact. It’s really as simple as that.

    2. Mums and dads – if we arrive at a pool, park etc. and you suddenly corral your kids with “we’ve just finished” or “kids it’s time to go and get a snack”. We know what you’re doing. We see you. You’re nervous your kid is going to be rude and would rather avoid it altogether. Seriously my family can clear a pool in five minutes.

    3. If your child is staring, take the lead. Say hello. She may say hello or she may ignore you, but you’ve shown your kids what to do. I swear I can count on one hand how many kids said hello to Lucy this week and we encountered up to a hundred in the resort. I love those kids, they warm my heart.

    4. If your child is being rude and running away, laughing, pointing, staring with an ugly face, intervene and quietly pull them away and tell them that’s rude. You’d do it if they did it to a neurotypical kid! Don’t run away from this opportunity to show them the right way to interact. This world will never get better for people with disabilities if we don’t teach people to respect.

    5. She sees everything and she hears everything. I hear it and I see it. I have the world’s best poker face but the family sees it all. We push it down to the deepest parts of our hearts because if we acted on this, we would be arrested repeatedly.

    6. Don’t be scared to talk to me, ask me a question. The most wonderful young mum came to talk to me in the pool, turned out she had grown up with a young man with CP and wanted to know about Lucy. After having Lucy be ignored for two days by everyone, it felt so good to be seen.

    7. We’re totally jealous of all the parents sitting around the pool/park chatting without having to watch like a hawk. Lucy took her seizures to a new level this week with one in the pool, so our safe space of putting on her floaties and letting her play is now out the window. We’re exhausted having to watch all the time. There’s never a moment outside the house we’re not having to watch. And she’s 12 years old – we’ve been watching her obsessively for 12 years. Not great for your mental health.

    8. On that note, feel free to offer some help. I’ll let you know if I’m okay, but I’ll also let you help if you can. When I’m trying to get Lucy out of a hard physical situation, I would love someone to offer help at least. I was struggling to get her out of a pool and 15 people sat and watched me. On that note, because we’re having to be so vigilant maybe offer to get them a coffee? I would have killed for a margarita from the pool bar but just couldn’t take my eyes off her to make that happen.

    I know it can be hard with kids, I get it, really. But imagine if that was your child that you saw ignored and run away from over and over again. You would want it to change for her in some way.

    I’ve made this public, feel free to share.

    Credit https://www.facebook.com/jen.kyriacou

     

  • You Do Not Want That Puppy Its The Runt

    A farmer had some puppies he needed to sell. He painted a sign advertising the 4 pups and set about nailing it to a post on the edge of his yard. As he was driving the last nail into the post, he felt a tug on his overalls. He looked down into the eyes of a little boy.

    “Mister,” he said, “I want to buy one of your puppies.”

    “Well,” said the farmer, as he rubbed the sweat off the back of his neck, “These puppies come from fine parents and cost a good deal of money.”

    The boy dropped his head for a moment. Then reaching deep into his pocket, he pulled out a handful of change and held it up to the farmer.

    “I’ve got thirty-nine cents. Is that enough to take a look?”

    “Sure,” said the farmer. And with that he let out a whistle. “Here, Dolly!” he called.

    Out from the doghouse and down the ramp ran Dolly followed by four little balls of fur. The little boy pressed his face against the chain link fence. His eyes danced with delight. As the dogs made their way to the fence, the little boy noticed something else stirring inside the doghouse.

    Slowly another little ball appeared, this one noticeably smaller. Down the ramp it slid. Then in a somewhat awkward manner, the little pup began hobbling toward the others, doing its best to catch up…

    “I want that one,” the little boy said, pointing to the runt.

    The farmer knelt down at the boy’s side and said, “Son, you don’t want that puppy. He will never be able to run and play with you like these other dogs would.”

    With that the little boy stepped back from the fence, reached down, and began rolling up one leg of his trousers. In doing so he revealed a steel brace running down both sides of his leg attaching itself to a specially made shoe. Looking back up at the farmer, he said, “You see sir, I don’t run too well myself, and he will need someone who understands.”

    With tears in his eyes, the farmer reached down and picked up the little pup. Holding it carefully he handed it to the little boy.

    “How much?” asked the little boy…

    “No charge,” answered the farmer, “There’s no charge for love.”

    Credit https://www.facebook.com/delynne.schneider

     

  • PIP Payment Is Going To Kill Me

    Well the government have done brilliantly on this decision to make everyone who receives pip (personal independent payment ) local government have decided if you are entitled to enhanced rates they will be taking £9 this year towards your care package plus what ever else they decide.

    For example they asked me to contribute £12.56 Jan 2019, in April 2019 they said no you don’t pay enough so it’s going up to £17.56 but just had a letter informing me that I now have to pay from July 22nd 2019 £50.06 all of these amounts are weekly so my choice is eat once a day and die quicker because I won’t survive without the help.

    I have complexed disabilities which I pay for lots of extras on top of normal utility bills etc I live alone so single income of employment support allowance and personal independence payments housing benefit and council tax support but I also get bedroom taxed and pay towards my council tax I am in a mess and no appeals can be made about the amount I have to pay even though it states on the letter if you have extra payments for items you can ask for it to be taken into account.

    They were called today and they stated no appeals but the letter states different so confused fed up scared not looking forward to the future I already have a rare lung disease which is not treatable only manageable but it is progressive so nobody knows how long I have or what the future holds I have been in intensive care 4 times this year so far it’s disgusting making disabled feel responsible for the cost to each local government

    Credit https://www.facebook.com/lisamcharman

     

  • The Reality Of Being A Stay At Home Carer To A Disabled Child

    The reality of being a stay at home carer to a disabled child.

    Of course we carers are grateful to stay at home and still have our child to look after but a carer is literally all you become.

    The mental health professionals’ advice is to talk but;

    Nobody talks about the isolation.

    Nobody talks about the loss of identity.

    Nobody talks about the loneliness.

    Nobody talks about losing your sense of self.

    Nobody talks about how you had to give up your life and often your job to care.

    Nobody talks about how you cry in the shower out of sight of everyone else because your day was overwhelming.

    NOBODY TALKS!

    No one understands why you put your hand on your child’s tummy when they are asleep to make sure they are breathing.

    No one understands the pressures of making sure they have all their medication and are given it at the proper times and proper dosage despite frequent changes.

    No one understands the medical procedures you must learn and use daily to keep your child safe and healthy.

    No one understands the scrutiny you are put under by professionals involved with your child.

    No one understands why you only get 4/5 hours broken sleep every night even in the rare event your child sleeps all night.

    No one understands why you’re always tired.

    No one understands why you’re irritable.

    No one understands why you need a mental break.

    No one understands why you’re aggravated by your other children.

    No one understands why you cannot take an active part in your other children’s schools.

    No one understands why after you have been home all day your house is not spotless.

    No one understands why you need just 5 minutes on your own.

    No one understands why you’ve lost your sex drive or self-confidence to meet a partner.

    No one understands why you are completely and utterly exhausted after all, you just sit at home all day.

    No one understands the feeling you have when you are told you don’t have a “real job.”

    NO ONE UNDERSTANDS!

    Most of us carers have been in employment but gave it up to take on our caring role. When we gave up our job we also gave up our social interaction with other adults outside the family home.

    I cannot tell you how many people have said to me “You have too much time on your hands. I wish I could stay at home all day.” I can guarantee after walking in my shoes for a couple of weeks they would soon change their minds.

    Source unknown.

  • Pampers Are Making Parents Very Happy Right Now

    Mums of late potty trainers are rejoicing at Pampers new nappies a brilliant number 8, nappies for 37lb+.

    Amanda Dawn from West Sussex has shared her joy at the new size nappies, she said

    “My son Dexter has Fragile X (Fragile X is a genetic condition that affects both boys and girls, although boys are often more severely affected.It can cause a range of issues with language, emotions, attention, behaviour and social interaction) Dexter is unlikely to ever be potty trained, he is non verbal and is 7 years old, the NHS provide us with a few packs of nappies a month but nowhere near enough to last, we often have to resort to buying adult incontinence pads.

    Some may think that’s not a problem but when you have a child of 7 who thinks like a 1-year-old he wants the fancy designs and for me I want the convenance of being able to buy nappies from any old shop. Thank you so much Pampers for making our lives better and the fact these nappies are far cheaper is fantastic”.

    Lucy Fitzpeters from Witham in Essex is also very happy “Wow big size nappies my Samuel is only 1 but such a chubster, we have been using pull ups but they aren’t great when he does a poo, these are gonna be a game changer for my family”.

    Several mums hope that other companies or supermarkets such as Lidl follow suit and start making nappies in the larger sizes to help parents of all children, disabled, larger and late trainers.

    Thanks Pampers for making mums lives easier!!!

    Would you like to share your own true, funny, heart breaking or inspirational story? Are you trying to raise awareness of any topic (doesn’t have to be parenting related) or would you like us to do so on your behalf. Are you  new or established blogger, do you think our readers may be interested in your words? Would you like to find out our advertising prices for our Facebook page and or website? If you answered yes to any of these then please send us an email to mumsadviceltd@outlook.com

  • Butlins Minehead You Should Be Ashamed Of Yourselves

    Disabled toilet facilities at Butlins Minehead

    My son is 14 and has cerebral palsy when making the booking with Butlins I asked was the park accessible and I was told yes definitely, but only one lift to the entertainment room and a lift that can only fit in one wheelchair or pram in, but the changing facilities were shocking. In this toilet only me and my son could just about get in the carer couldn’t fit in too so I had to lift him out myself and lay him on the floor

    When challenging staff about their facilities they told me to take him back to the apartment to change him even then my apartment was 10/15 walk away from the main complex and the wheelchair could only fit into the hallway so again I would have to lift him out and lay him down and also with him having changed 9/10 times a day

    All the money made by Butlins and these are there changing facilities for disabled people

    It’s degrading and wasn’t nice especially when I went in once and the floor was all wet so I had to dry all the floor with paper towels

    Change needs to happen and fast

    By Anita Patel via Mum on a mission

    Would you like to share your own funny, true, heart breaking, scary or inspirational story? Are you trying to raise awareness of any topic (does not have to be parenting or child related) or would you like us to do so on your behalf (can be done anonymously)? Would you like to find out our advertising prices for our Facebook page and or website? Do you feel your new or established blog may be on interest to ure readers? (full credit given) If so please send us a short email to us at mumsadviceltd@outlook.com

  • Losing My Hearing Has Made Me See How Little People Understand

    Since I completely lost my hearing, it’s kind of opened up a whole new “world” for me. It’s made me see how much people don’t understand how a deaf person relies so much on facial expressions.

    Even when I had my hearing, I didn’t realise myself until now. Facial expressions are a big deal to those who are fully deaf. Obviously I’m relying on lip reading as well at the moment but also on how things are getting put across, whether the other person is smiling or if they’re in a bad mood or they just can’t be bothered.

    It’s made me see that there really isn’t enough awareness out there to those who are “hearing”. I didn’t realise how much I RELIED on facial expressions until now. Usually, I’d listen to the tone of the other persons voice and hear how things are said.

    There really does need more awareness to be raised. More awareness in the work place, for example or lessons in school about disabilities and invisible disabilities. A person is more than likely to come across someone who is deaf/disabled in their lifetime and need to know how to communicate with those people or accommodate to a disabled persons needs.

    Comfortable Communication

    • Do not yell or talk loudly.

    • Do not mumble.

    • If the person prefers to use speech-reading, speak normally and avoid speaking too slow or too fast.

    • Do not over emphasize your facial expressions or lip movements as this can reduce communication

    • Face the person and make eye contact when speaking.

    • Be patient and relaxed.

    • Be sure to ask the Deaf or hard of hearing person for ways to improve communication.

    Emailed in by Jessica Carne

    If you have a story you wish to share or would like to raise awareness of any topic please send us an email to mumsadviceltd@outlook.com

  • Vulnerable Child Restrained by Four Adult Males

    A distraught mum has shared images of her badly beaten daughter we would like to help to prevent this from happening to another child and raise awareness

    The mum Claire Nossiter said:

    vulnerable Child Restrained by Four Adult Males

    My daughter is disabled she has autism and PWS. She can be a handful but we as a family have always tried to do our very best.

    She attended a school for complex needs which is of the highest care need. The local authority provided a 1-1 during school hours this was a woman. Well on the 7th March 2012 my daughter returned from school looking like the pictures below.

    Vulnerable Child Restrained by Four Adult Males
    Vulnerable Child Restrained by Four Adult Males

    This happened as 4 MALE members of school staff restrained her. She was sent home to me looking like this. I took her to hospital as I thought her jaw was broken. She was admitted to Yorkhill where I was questioned by police. As the consultant of 22 years experience had originally thought my story was bazaar ….that a school did this her original thoughts was it was me !!!!

    Vulnerable Child Restrained by Four Adult Males
    Vulnerable Child Restrained by Four Adult Males

    The police attended and got statements etc They did a very poor investigation at this time but in Nov 2016 reopened investigation (after I complained)and charged 2 of the NLC employees involved culpable and reckless conduct. Well the crown office have decided not to take this to court and I want justice. Please can I ask you help me in getting the justice my vulnerable daughter deserves…

    Vulnerable Child Restrained by Four Adult Males
    Vulnerable Child Restrained by Four Adult Males

    Our justice system is all wrong.

    Every single staff member of the school are guilty as far as I’m concerned as each of them witnessed this or saw the aftermath but not one of them reported this.

    No one will silence me…. I will not go away…. I will continue to fight like I have done for years for my daughter.

    If I had done this to Lyndsay she would have been removed from my care but because it’s NLC staff it’s ok….. on her medical notes the doctor wrote to many bruises to count. Our justice system should protect the most vulnerable but it hasn’t done that in this case. I am asking you all to help me petition this and share this.

    Please sign this petition https://you.38degrees.org.uk/petitions/ban-disproportionate-restraint-on-disabled-children-and-adults-and-listen-to-them-in-court

  • Dad Masturbates His Disabled Son And Explains Why

    Dad Masturbates His Disabled Son And Explains Why

    Perhaps one of the most controversial posts of late has been that of a blog by Fayzal Mahamed.

    In the blog, he explains his actions in physically masturbating his disabled son and why he feels it is the best thing he can do for his therapy.

    Mahamed explains in his blog post why he has chosen to do this and hopes to bring light to the taboo subject of disabilities and sex.

    Fayzal Mahamed. Fayzal Mahamed is making headlines with his controversial blog post regarding his severely disabled son. Mahamed has openly stated he has chosen to masturbate his son as a treatment method.

    Dad Masturbates His Disabled Son And Explains Why
    Dad Masturbates His Disabled Son And Explains Why

    Mahamed’d son, Mustafa suffers from PIMD or Profound Intellectual Multiple Disabilities. He has severe disabilities that have left him unable to communicate or voluntarily move any of his muscles.

    He has an estimated IQ well below 20 and is basically bed-ridden if it were not for his father’s care.

    Mahamed explains that from around the time Mustafa was 17, he noticed his son would get erections during bath time and through regular therapeutic massages.

    What Mahamed found in his research was a lot of hush-hush and brick walls. He explained that there wasn’t a lot of help out there for people in his situation.

    In the beginning, Mahamed was confused and overwhelmed with caring for his son but felt as though there must be something he could do. “As a father who understood sexual behavior, I knew that my son was trying to express his sexual feelings because of the arousal that was happening around his body and that this sexual behavior was no different than most teenagers encounter after puberty in their personal sexual development,” Mahamed wrote.

    Mahamed writes his biggest wall that was encountered came by way of fear in others. He states the issue itself is rarely discussed because it’s feared. “There is a taboo in discussing general sexual matters such as masturbation in society and this attitude gets aggravated in the discussion of sexuality of persons with disability,” he states.

    Mahamed was able to find literature on sexual therapy and sex workers who were trained to help people with disabilities, but says none of which were available to his son. He states from insurance issues, therapy was out, and there were no qualified (or legal) sex workers in the South Africa area where they live.

    After extensive research and discussions with medical personnel, Mahamed decided on a course of action for his son. “I thought the only way forward was to treat my son equally to other disabled persons and apply the professional advice given to other profoundly disabled persons, namely, therapeutic masturbation to relieve and gratify my son’s sexual expression,” he stated.

     It was after this lengthy research that Mahamed came to the realization he would have to provide the therapeutic masturbation himself if he was serious about going that avenue for his son.

     “It was at this stage that I soon came to realize that there was no alternative way to provide the therapeutic masturbation that my son needed other than to apply the therapeutic masturbation on my own,” Mahamed explained in his blog.

    As Mahamed describes further in his blog, the experience of therapeutic massage was nothing more than a “natural extension” of the care he was already providing for his son. He states it was no different than caring for his son by bathing him or changing a nappy.

    Mahamed explained his son’s reaction to the first treatment by saying, “I remember how my son expressed a sense of relief, delight and happiness with a smile followed by laughter and other sounds of contentment when I applied the therapeutic masturbation.”

     The masturbation therapy has worked wonders on his son’s demeanor according to Mahamed. He states the therapy has “led to a calmness in my son’s behavior and he continues to show his contentment and happiness all around him.”

     Mahamed says he understands the controversy behind the therapy procedures, but hopes his blog will bring light to a little-discussed topic. “I wish to appeal to parents and caregivers to consider that such care and nurture includes sexual care and this begins by recognizing that all persons with disabilities are sexual human beings”.

    Dad Masturbates His Disabled Son And Explains Why