Tag: Balance

  • This Mama Knew Something Wasn’t Right

    Where do I begin? Our baby, Sienna-Rose has always been so unsteady with her balance.. we thought nothing of it at first. We assumed it was down to being short sighted and having a double squint! She was still hitting all of her milestones on time. Nothing to worry about right?

    Wrong.. fast forward to January the 30th 2019. Sienna has her injection and we were pre warned there would be a fever. She had the fever.. followed by sickness, unsteadyness, lethargy and a high temperature. We firstly rang our GP who recommended calpol and lots of rest. The sickness still came. After a few weeks of constant sickness and crying we took things further. We took her to A&E who did their checks and diagnosed “gastritis” she was prescribed a course of amoxicillin which she did dont take down neither did it fix the sickness.

    We returned to our childrens walk in centre only to be told the same thing.. “gastritis” again she was prescribed a stronger form of antibiotics only for her not to take down again.. then the motor neuron issues took place. Sienna was showing clear signs of balance issues and could no longer walk/crawl/sit upright. She was very lethargic and hot. We went to A&E for the third time just to be told her immune system was weak and that some babies take longer to recover than others.

    Weeks went by while she rapidly reclined. She was soon stuck in a corner of the sofa watching TV and sleeping all day. We tried to contact our health visitor but she left the service and forgot to transfer her notes over to the new health visitor who didnt know she existed. I came to the end of my tether and broke down to the lady in the weigh in clinic who took my concerns seriously. She refered her to paediatrics but we wasnt going to be seen until June.

    7th of May came, I rang 111 (emergency service information) because Sienna couldn’t lift her head from her shoulder and was struggling to straighten her back. I was told to wait for a phone call of a paediatric doctor. They finally rang back 2 and a half hours later. They asked if she was still tilting to one side. She wasnt. So they told me to keep an eye on her and bring her in if she did it again!
    Friday the 10th of May 2019 Sienna fell off the sofa. She bumped her head and her eyes rolled back. I didnt bother phoning. I took her straight in. I lost all faith in the emergency phone services/GP/Health visitors. When we arrived then again didnt believe what I was saying, when she was too poorly to move and her cry was weak. Eventually the most amazing doctor came and spoke to us. She listened to everything. Even wrote it all down. She measured Sienna’s head and demanded an urgent MRI. 
    11th May 2019 We had our diagnosis. Within 2 hours of the MRI. We was taken to see the consultant. He broke the news Sienna has a tumour just a slight bit bigger than a golf ball in the back of her brain. We were heart broken. She had an external shunt fitted to drain the mass of fluid on her brain. In 48hrs they collected 650ml of spinal fluid from her head stabilizing her condition ready for her operation 14/06/2019
    Surgery day came, they’ve so far removed what they think is all of the tumour.. 

    17/05/2019
    We had the results! Had a meeting with the consultant..
    This Mama Knew Something Wasn't Right
    This Mama Knew Something Wasn’t Right

    Good news – They’ve gotten rid of 95% of the tumour. 
    Bad news – Its defiently a stage 4 aggressive medulloblastoma. The 5% that remains is attached to a membrain that the surgeon didnt want to remove as it would effect her brain development. In two weeks time she will have chemotherapy.

    We expected this outcome.

    Still doesn’t stop the pain, anger and emotion. I know she is a strong ass girl who will kick cancers ass! 

    I want to raise awareness about the earlier detection of a brain tumour especially in children. Because nobody should have to suffer what Sienna-Rose did! For months she was miss diagnosed. All it takes to diagnose is an MRI brain scan! Here are some symptoms to look out for..
    – Involentry eye movement
    – Tilting of the head 
    – Growth of the head 
    – Vomiting and nausea 
    – Lack of interest in food 
    – Poor movement 
    – Behaviour changes 
    – Unable to hold balance/Regression in milestones!Even if you think it’s not.. request to be seen my a neurologist to rule out a tumour! Earlier detection means better treatment and a higher survival rate! Trust your gut instincts and if you feel something is wrong, please fight until you find out what is! 
    – Sienna-Rose’s Mum xx

     

  • Lloyds Banks Texts Are Making Me Suicidal

    I know I am poor, I know I am struggling with money I do not need to be constantly reminded of this fact.

    Lloyds bank is pushing me the point of contemplating suicide,I dread hearing my phones text message tone, I am a single mum to three children who only have me to rely on and to financially support them.

    I have recently been made redundant from a major high street name company who went bankrupt.

    I was given £500 redundancy money which has all gone, I made the money stretch as far as I could but it did not last long, I am desperately seeking work and have had to sign on but it is taking its time in coming and I am left living off of a very minimal income.

    Every day Lloyds bank text me to tell me how little money I have or that I’m overdrawn, I bloody know I’m poor you don’t have to keep reminding me!!!

    I have tried texting with STOP, I’ve emailed them, phoned them, tried blocking the number and been into my local branch but I am still bombarded with these texts about my current financial income.

    Lloyds Banks Texts Are Making Me Suicidal
    Lloyds Banks Texts Are Making Me Suicidal

    I get that the bank think they are helping people mange their money but all they are doing is reminding me how bad my life has become and they don’t seem to understand that these texts are affecting my mentel health.

    Lloyds you’re heartless, leave me alone and stop making me feel worse than I already do, if i could add extra funds to my bank account do you not think that I would, I am strugglng to feed my family, I do not need to be told I only have £48 in my bank, I am totally aware that I have hardly any money these texts are not helping me b7yt pushing me to the edge.

  • Do You Know What Dyspraxia Is?

    My son Elijah has dyspraxia, he’s 8 and many people I speak with do not know what is is.

    So here’s some facts about dyspraxia…

    It is thought that 5-10% of the population have dyspraxia. There may be many more people who have dyspraxia, people often find the statistics very surprising as dyspraxia is a lot more common than you might think!

    Dyspraxia is more common in males than females.

    It is thought that males are four times more likely to be affected by dyspraxia than females. However, there might not be as much difference as statistics suggest. The Dyspraxia Foundation’s theme for this week is “Is it a battle of the sexes?” and looks at the fact that females often go through school, university and even the workplace without knowing.

    Dyspraxia is not the same as dyslexia. Despite the fact that: they sound the same, they are both classed as specific learning difficulties, and they have overlaps such as difficulties with short term memory and organisation, they are two different things! There’s been so many times where I’ve told someone my son has dyspraxia and they’ve thought I meant dyslexia!

    The signals sent from their brain to their body get muddled.

    Most people’s brains will send signals to their body successfully, enabling them to perform tasks that require balance and co-ordination, to speak fluently, to process things at a normal speed. Whereas for those of us with dyspraxia, these signals get muddled – you could even picture them as tangled wires. This can affect us in a variety of ways.

    Dyspraxia can affect the following areas: physical, speech and language, social, eye movements, sensory, spatial awareness, memory, organisation, concentration, emotion, sense of direction and thought processing.

    As you can tell, dyspraxia affects a variety of things. This means that summarising it is not an easy task and I’ve probably missed something off the list!

    Physical – fine motor skills, gross motor skills, balance and co-ordination.

    Speech and language – difficulty pronouncing certain words, stuttering, getting words muddled up, difficulty organising the sequence of the sentence, difficulty controlling tone and volume of speech.

    Social – difficulty with eye contact, literal thinking, difficulty knowing when to interject in a conversation particularly in large groups, may repeat ourselves, background noise makes social situations more difficult.

    Eye movements – tracking, relocating.

    Sensory – over/under-sensitive to touch, temperature, noise, smell, taste, pain, light.

    Spatial awareness – knowing where they are in relation to other objects/people, difficulty judging amount of pressure to apply to things (I wasn’t sure what other category this would fit into!).

    Memory – difficulty with short-term memory, following a long list of instructions can be difficult.

    Organisation – made more difficult due to difficulties with memory, organisation doesn’t come naturally to them.

    Concentration – daydream very easily, difficult to concentrate for long periods of time, concentration can be made even more difficult by background noise.

    Emotion – tendency to get easily stressed and frustrated, difficulty adapting to changes in routines.

    Sense of direction – getting lost easily, difficulty telling left and right apart.

    Thought processing – thought processes can be slower than for others, tend to have lots of thoughts at once – can make getting to sleep difficult as their brain can’t ‘shut down’ easily.

    So if someone tells you they have dyspraxia or their child I hope you have more understanding