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Tag: alder hey
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I’d like to tell you a story about Alder Hey…. My sister when she was 8 yrs old..was in that hospital and they told my mum .. It’s all in your daughters head, there’s nothing wrong with her, my mother insisted , demanded and banged her fist on the consultants table, I want you to do more tests she’s not putting it on, she’s in bad trouble and screams in pain with her neck, finally after months of them saying my sister wasn’t very poorly, she was found to have an inoperable tumour in her neck, she had to have chemotherapy, and my mother over heard a nurse saying ..”why don’t they let that little girl go home and die in peace” š³
My sisterĀ continued to have radiation treatment and finally came home but my mother was told she would not survive it, although my sister has had numerous health issues over the years because of the effects of radiation and another flare of cancer can I just say that my sister is now 72 and defied all their odds…. So even years ago they got it so badly wrong at Alder hey, can you imagine if my mum had of listened to them and given up!!!
Parents if you feel that Doctors are wrong or you want more tests done do notĀ just take a Doctors word for it, a mother’s instict is often right, some times even the most trained professional can be mistaken
Credit Suzie Ria Smith
To share your own personal story or raise awareness of any topic (it doesn’t have to be parent related) or to advertise on Mums advice Facebook page or website please email us at mumsadviceltd@outlook.com
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This is my daughter Amelia, she was born at North Staffordshire hospital at 3.30pm on 23/9/2017 Saturday evening I was induced due to excessive fluid and spd.i had a horrible pregnancy when I gave birth to Amelia she was purple and could not swallow she was foaming from the mouth the midwives convinced me she had a strider to which I knew it was more as I’d previously had 2 children before.
The midwife then left me andĀ Amelia’s father alone for 1h45 minutes I rang the emergency buzzer as she was getting dramatically worse in her health, an intensive care pediatric consultant came for Amelia and rushed her to nicu where they went on to putting tubes down her nose, at this point the only way Amelia could get rid of her secretions was to be lay flat on her belly otherwise she would choke.
At 10.45pm Amelia had further test done with the tube they tried to suck air out of her belly to which had no success they had no idea why this was happening so they ordered a scan, after the scan weĀ were told Amelia was unable to swallow and that she could have a few different defects and that her life was 50/50, they couldn’t tell us for sure what it was she had and they didn’t know what to do or how to treat it as they had never seen this condition before, I never left amelias side in the nicu all that night they left amelia on her belly all that time with no proper Amelia’s care or diagnosis.
At 1am a doctor came to me to tell me Amelia would either be moved to alder hey or Birmingham to get a diagnosis and fix the problem yes they called her a problem š” at this stage me and her father had no idea what to do weĀ were both distraught š©, a private ambulance came from Birmingham at 3am to collect Amelia and straight away knew what she had they were absolutely disgusted with how they had cared for her, they attached suction tubes in her mouth and oxygen down her nose, when arriving at Birmingham we were met by three surgical consultants who I must admit were lovely they explained everything in such detail they also noted thatĀ Amelia’s condition should have been picked up on my anti natal scan and I shouldn’t have had Amelia by natural birth and this could have killed her I should have had a planned birth with them.
At 10am Sunday morning aged 10 hours Amelia went down to have a major operation at this stage we know she has tracheo-oesophageal fistula/ distal esophageal atresia, when Amelia came out of her operation 8 hours later it was a huge success she spent 3 days in intensive care.
While in intensive care Amelia would not wake up this was due to the amount of pain killers and sedation she was on, one doctor of the intensive care ward ordered Amelia to come off all drugs and sedation and to replace these with paracetamol, the surgeon also ordered Amelia to be weaned of the ventilation within 24 hours otherwise she would become dependent.
When they put Amelia on c-cap she sat very low on all oxygen levels and heart rate they said this was due to the 3 days Amelia was on the ventilation that it causes respiratory distress and can also cause bacterial pneumonia so she was on very strong antibiotics the whole time we spent in the hospital.
Moral of the story not every doctor is right not every doctor can say what they have, we don’t have enough medically trained specialists, every child deserves a chance and If it wasn’t for Birmingham Amelia certainly would not be here now.
Credit Abbie Richardson
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Little Kyrah is currently at Alder hey hospital the same as the now famous Alfie Evans who is currently fighting for every breath and proving the doctors and courts wrong.
Kyrah’s mum is also fighting her own battle a battle to save her daughter’s life and to have a diagnoses.
Kyrah’s mum posted on her childs support page saying
“Nearly 5 years old and still alder hey TRUST have no plan,
Kyrah has a chronic disease a terminal illness and still no care plan while alder hey trust were busy trying to make me look bad I built my own case on them and now its all falling perfectly in to place they used my daughter’s life to blackmail me while I give them every opportunity possible to work with us theyĀ did notĀ want to do that they had their own plan.
I had so much respect for them before they tried everything to tear us apart now I wonder how these people even sleep at night knowing what there doing is wrong on so many levels
#IWONTBESHUSHED #IWontBeStopped #TheTruthWillAlwaysFindAwayOut
Alfie Evans case has put the care and treatment at Alder hey hospitalĀ into the lime light, many people are now questioning whether or not the hospital is trying to cover up poor treatment, medical negligence or simply don’t care, we wouod like to hear your views in the comment section.
To follow Kyrah’s journey and fight for the right to live, please take a look at her support pageĀ Ā Ā Ā https://www.facebook.com/KeepFightingBabyKyrah/
If you have had a bad or even good experience at Alder hey we would love to hear from you, or if you have a story or want to raise awareness of a different topic please send us an email to mumsadviceltd@outlook.com
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One Boys Fight For The Right To LIVE
Alfie Evans is at Alder Hey Hospital in the PICU. He has been hospitalised continuously since December 2016, dealing with chronic seizures of an undiagnosed disorder. The hospital has given up on him and applied to the High Court to remove parental rights and withdraw ventilation to end Alfieās life. Yet Alfie and his parents are FIGHTING!
Alfie has been been at Alder Hey in Liverpool PICU since December 2016. After a year of being there, this hospital has still not done procedures which should have been done a long time ago, like a tracheostomy and a PEG tube. This would be done immediately as soon as Alfie gets to the European hospital who is ready and willing to take him. The only thing stopping him from going to this hospital ā is Alder Hey and their turning to the court. They have given up on him!
Alfie’s parents are in court tomorrow , as the hospital wishes to appoint a guardian.
Alfie has been given a chance at this European hospital who is waiting for Alfie to try and treat and diagnose his illness.
Alfie has not been diagnosed with a terminal illness, HE IS STILL UNDIAGNOSED. Yet, ALDER HEY have put in an application to REMOVE HIS LIFE SUPPORT!
Please do notĀ let them do this to him. Lots of disabled children live happy lives. Alder Hey say that āTreatment is futileā and He has āno quality of life.ā Being disabled, doesnāt mean his life should be written off.
Alder Hey say that Alfie is āinsensateā and that He āfeel nothingā. Alfie does react, He stretches, He sneezes, He opens his eyes, He sucks a dummy, HE IS AWARE! and HE IS LOVED